What does primary use mean?
Health data are accumulated throughout a person’s life in Finland.
Data is generated every time we use healthcare services: measurements taken at maternity and child welfare clinics, notes from doctor’s visits, prescriptions, laboratory results, and imaging examinations are all stored in patient information systems. In addition, data may also be recorded in other registers, for example related to social security, education or taxation.
The recording of health and social data is always carried out by professionals. Doctors, nurses, and other social and health care providers enter data so that care can be planned, provided, and monitored.
Recording data is a legal requirement: for instance, patient data must be logged to ensure patient safety, high-quality care, and the fulfillment of official regulatory obligations.
This is referred to as the primary use of health and social data, meaning that data are used for the original purpose for which they were collected – namely, the treatment and service of individuals within the social and health care system.
Emma Example – What data is collected about Emma?
Emma is a woman in her forties, living in Tampere Finland with two children. Her daily life includes occasional occupational health visits and dental check-ups.
Each visit generates data about Emma. During occupational health visits, symptoms, measurements and care instructions are recorded. The dentist documents examinations performed and possible X-ray images.
Additionally, Emma receives child benefits from Kela, the Social Insurance Institution of Finland.Kela maintains this information in their system.