The creation of national health data hubs: what lessons can be learned?

11.05.2022 TBA

We warmly welcome to participate in a hybrid conference organised jointly by the French Health Data Hub and Findata and in collaboration with the French National Health Insurance Fund (CNAM) & the Directorate for Research, Studies, Evaluation and Statistics (DREES).

The event will review the major milestones in the establishment of the French and Finnish national health data platforms, the bilateral partnership signed between the two respective structures, as well as the procedures for accessing health data in France and Finland. 

In addition to the representatives of these two platforms, the sessions will be led by representatives of the ministries concerned – Ministry of Health in Finland and Ministry of Solidarity and Health in France – but also the French National Health Insurance Fund (CNAM), a speaker from the European Commission and one or more speakers from Sitra, the Finnish innovation fund.

This event will take place on May 11, 2022 and an online simultaneous retransmission is open for registration.

What: A joint conference of Health Data Hub and Findata
Where: Live stream [TBA]
When: May 11 2 PM – 6 PM CEST


14:15 – 15:15: Roundtable 1 – Implementing national data platforms

  • Océane Xayakhom-Dauvergne, Moderator, International project manager at Health Data Hub
  • Stéphanie Combes, Speaker, Director at Health Data Hub
  • Johanna Seppänen, Speaker, Director at Findata (Finnish Social and Health Data Permit Authority)
  • Fabrice Lenglart, Speaker, Director at DREES (Directorate for Research, Studies, Evaluation and Statistics)
  • Thomas Fatome, Speaker, Director at CNAM (French National Health Insurance Fund)
  • Joni Komulainen, Speaker, Senior Ministerial Advisor at Finnish Ministry of Social Affairs and Health

15:20 – 16:20: Roundtable 2 – European perspectives on health data sharing

  • Markus Kalliola, Moderator, Project Director at Sitra
  • Peija Haaramo, Speaker, Chief Metadata Specialist at Findata (Finnish Social and Health Data Permit Authority)
  • Emmanuel Bacry, Speaker, Scientific Director at Health Data Hub
  • Irène Kesisoglou, Speaker, Project Researcher at Sciensano
  • Bernard Hamelin, Speaker, Member of the Scientific Advisory Board at Health Data Hub
  • Ségolène Aymé, Speaker, Vice President of the Scientific Advisory board at Health Data Hub – Founder of ORPHANET (INSERM)

16:20 – 16:30: Conclusion

  • Isabelle Zablit, Speaker, French e-health directorate

16:30 – 18:00: Reception