Which laws regulate the secondary use of health and social data in Finland? The secondary use of health and social data is governed by several laws that safeguard privacy and define the conditions... Read more Which laws regulate the secondary use of health and social data in Finland?
What are the benefits of the secondary use of health and social data for citizens? Using health and social data for secondary purposes, such as registry-based research, benefits society in many ways. By combining registry... Read more What are the benefits of the secondary use of health and social data for citizens?
How is Findata’s operation supervised? Several authorities supervise Findata’s operation to ensure that the granting of data permits and the processing of data are carried... Read more How is Findata’s operation supervised?
Publishing results from other secure processing environments Note: Results exported from Statistics Finland’s Fiona remote processing environment after 18 March 2025 do not need to be submitted... Read more Publishing results from other secure processing environments
Publishing results from Kapseli The data is processed within the Kapseli environment, and only the final analysis results are published. The permit holder produces... Read more Publishing results from Kapseli
Can you opt-out from secondary use under the EHDS? Yes. The EHDS regulation includes the right to opt out from secondary use, meaning your data will no longer be... Read more Can you opt-out from secondary use under the EHDS?
Can the right to opt-out be restricted in the EHDS? Yes, in exceptional cases (e.g. important public interest), Member States may allow the use of data even if the individual... Read more Can the right to opt-out be restricted in the EHDS?
Is there a link between the opt-outs in primary and secondary use under the EHDS? No, they are independent of each other. It is possible for to use one opt-out, but not the other. Read more Is there a link between the opt-outs in primary and secondary use under the EHDS?
Who is a data holder under the EHDS? Data holder is an organisation that has the right or obligation to process health data, such as hospitals, research institutions,... Read more Who is a data holder under the EHDS?
Who can use data for research under the EHDS? Under the EHDS regulation, both for-profit and non-profit entities may use health data for research purposes. Research may also include... Read more Who can use data for research under the EHDS?
