Secondary use of social and health data means that client and register data from social and health care services are used for purposes other than the primary reason for which they were originally collected.
Findata grants permits for the secondary use of social and health data when information is needed from multiple public data controllers, the private sector, Findata’s ready-made datasets, or Kanta services. We compile and preprocess the data while ensuring the protection of citizens’ privacy. In addition, we ensure the anonymity of the published results.
You have rights to your personal data when we process personal data as a data controller.
On this page you’ll find information on the secondary use of social and health data, your data rights, and how to exercise them
What is secondary use of health data?
When you visit a doctor or use social services, information about you is saved in different systems. This information is used to provide you with care and services – this is referred to as primary use.
The data can also be used for other, secondary use purposes. For example, registry studies can use data originating from national or regional health care registers.
Before data is released to the permit holder, it is processed in a way that significantly reduces the possibility of identifying individuals. Direct identifiers, such as names and personal identity codes, are removed and replaced with codes. Data may only be processed in a secure environment. For some purposes, such as development and innovation, only anonymous, aggragated statistical data is available.
Secondary use purposes:
- Scientific research
- Creating statistics
- Planning and investigation tasks by authorities
- Teaching and education
- Development and innovation
- Knowledge management
- Steering and supervision of social and health care by authorities
Legal framework and your rights
The secondary use of social and health data in Finland is regulated by the Act on the Secondary Use of Social and Health Data (also known as the Secondary Use Act). The act ensures that data is used safely and effectively while protecting individuals’ rights.
The Secondary Use Act is based on an opt-out model, meaning that data may be used for secondary purposes defined in law without notifying each individual separately.
However, under the General Data Protection Regulation (GDPR), you have rights concerning your personal data. These include the right to object if you do not want your data to be used for secondary purposes.
What does Findata do?
Findata is the social and health data permit authority in Findata does not hold personal data of its own, with the exception of ready-made datasets. We grant permits for register data held by health and social sector operators and authorities as defined in the Secondary Use Act.
Our responsibilities include:
- Granting permits for the secondary use of social and health data when the requested information is sourced from multiple public data controllers, private service providers, Findata’s ready-made datasets, or the national Kanta services or data controllers who have transferred their authority to Findata.
- Compiling, preprocessing, and pseudonymising or anonymising the data to ensure it is ready for use while safeguarding individuals’ privacy.
- Maintaining the secure Kapseli® processing environment, where permit holders can access and analyse the data safely.
- Ensuring that published results are anonymised, so no individual can be identified.
Frequently asked questions about the Secondary Use of Social and Health Data
What is a data permit?
A data permit is a fixed-term authorisation granted by a public authority to use individual-level personal data for a specific, clearly defined purpose, such as research or compiling statistics.
A permit is granted only for a justified reason, and the consent of each individual is not required. Authorities such as Findata, Kela, or wellbeing services counties are responsible for ensuring that data is used lawfully and responsibly.
The permit holder is given access only to the data necessary for the research. The dataset is delivered in pseudonymised form: names and personal identity codes are replaced with codes, so individuals cannot be identified. The data may only be processed in a secure processing environment without an internet connection, and only named individuals are granted access.
Read more:
What is Findata?
Findata is the social and health data permit authority in Finland. It was established in 2019, and its operations are based on the Act on the Secondary Use of Health and Social Data, commonly known as the Secondary Use Act.
We grant data permits for the secondary use of health and social data when the data is needed from multiple public data controllers, from the private sector, from Findata’s ready-made datasets, or from the Kanta Services. We compile and preprocess the datasets with strict attention to protecting individuals’ privacy.
Findata also maintains the secure Kapseli® processing environment, where individual-level data is processed safely.
Can individuals be identified from the data?
Before individual-level data obtained under a data permit is released to the permit holder, Findata processes it in a way that significantly reduces the possibility of identifying individuals.
Direct identifiers, such as names and personal identity codes, are removed from the dataset and replaced with codes. This is called pseudonymisation. In addition, precise data may be generalised. For example, a postcode may be replaced with a region, or a date of birth with a year of birth.
Pseudonymised data may only be processed in a secure environment without an internet connection. The permit holder commits to conditions that prohibit any attempts to identify individuals.
For statistical-level data requests, fully anonymous data is provided. This data describes population groups rather than individuals, and individuals cannot be identified from it.
Identifiable data is only released for particularly justified reasons.
For what purposes can social and health data be used?
The secondary use of social and health data is only permitted for purposes defined by law, such as:
- Education
- Scientific research
- Statistics
- Planning and reporting duty of an authority
- Development and innovation activities
- Knowledge management
- Steering and supervision of social and health care by authorities
Different types of data are available for different purposes:
- Individual-level, pseudonymised data is available for research, statistics, planning and reporting tasks of public authorities, and education.
- Anonymous, aggregated statistical data is available not only for the above-mentioned purposes, but also for development and innovation activities, knowledge management, and the steering and supervision of social and healthcare services.
In addition, wellbeing services counties and other service providers may use the data recorded in their own registers without a separate permit for purposes such as planning and evaluating their operations.
All data permit and data request decisions made by Findata are public. You can view them here: Issued permits
What types of data can be used with a permit from Findata?
Permits granted by Findata cover register-based data from Finnish social and healthcare services. This refers to data generated when people use social and health services.
Register data is stored, for example, in patient and client information systems of wellbeing services counties, national registers, and the Kanta Services.
Findata grants data permits and data request decisions for the secondary use of health and social data when the application concerns:
- data from several public health and social sector data controllers
- register data from private social and health service providers
- data stored in the Kanta Services
- Findata’s ready-made datasets
- data from controllers that have transferred their permit authority to Findata
Read more: Data
Can anyone get a permit to use social and health data?
Anyone may apply for a permit, but it is only granted for the purposes defined in law and for projects that meet the permit criteria and data protection requirements. Each application is assessed individually, and data is only released for necessary use.
Data permits and data request decisions are official administrative decisions. The decision process has two stages: the application handler acts as the presenter, and the Director of Findata or their deputy makes the final decision.
A proposed decision does not always lead directly to a permit being granted. Sometimes the application is returned for further preparation or requires modifications.
Which laws regulate the secondary use of health and social data in Finland?
The secondary use of health and social data is governed by several laws that safeguard privacy and define the conditions under which data may be processed.
The EU General Data Protection Regulation (GDPR) regulates all processing of personal data across the EU. It applies whenever personal data is processed.
The regulation on the European Health Data Space (EHDS) creates a common EU framework for the use and exchange of health data, harmonises the use of health data across the EU, and strengthens individuals’ rights to their own data. The regulation entered into force in March 2025 and will be implemented gradually. The provisions concerning secondary use will apply from March 2029.
The Finnish Data Protection Act complements the GDPR at national level. It specifies when sensitive personal data, such as health data, may be processed in Finland.
The Finnish Act on the Secondary Use of Health and Social Data (the Secondary Use Act) regulates the secondary use of health and social data in Finland. Findata’s operations are based on the Secondary Use Act. The Act was amended in 2025.
Other key laws include:
- Act on the Processing of Client Data in Healthcare and Social Welfare
- Medical Research Act
- Clinical Trials on Medicinal Products for Human Use Act
- Act on the Medical Use of Human Organs, Tissues and Cells
- Biobank Act
Read more:
What are the benefits of the secondary use of health and social data for citizens?
Using health and social data for secondary purposes, such as registry-based research, benefits society in many ways.
By combining registry data from large populations, it is possible to generate new knowledge that helps develop, for example, treatments for diseases or practices in social services.
Practical benefits for citizens include:
- When treatment guidelines are studied and developed, it ensures that care is based on up-to-date research evidence
- Medicines can be made safer and their side effects can be monitored
- New health technology can be developed, such as applications and devices that support treatment
- Hospital and health centre services can be improved and streamlined as processes can be developed and studied
- Research evidence supports decision-making that promotes public health and reduces wellbeing gaps
Read more: Issued permits
How is Findata’s operation supervised?
Several authorities supervise Findata’s operation to ensure that the granting of data permits and the processing of data are carried out in accordance with the law.
Key supervisory bodies include:
- Data Protection Ombudsman, who supervises the processing of personal data and compliance with data protection legislation
- Parliamentary Ombudsman, who oversees the lawfulness of authorities’ activities
- Finnish Supervisory Agency, who supervises secure processing environments
In addition, Findata’s operation is guided and developed by a steering group appointed by the Ministry of Social Affairs and Health, which includes representatives from the ministry and data controllers.
How is the right to object implemented at Findata?
When you object to the secondary use of your data through Findata:
- Your request is recorded in the case management system maintained by the Finnish Institute for Health and Welfare (THL).
- Your data will be removed from datasets received by Findata based on your personal identity code. Therefore, we must retain and process your personal identity code to implement the request.
What is the EHDS?
The European Health Data Space (EHDS) is a regulation of the European Union that establishes a common framework for the use and exchange of health data in EU countries. The aim of the regulation is to strengthen citizens’ rights to their own electronic health data and to enable the secure cross-border secondary use of health data.
The EHDS regulation is similar to the current Finnish Secondary Use Act, but it also introduces changes. The regulation includes partly different purposes of use, some of which are reserved only for public or EU entities. In addition, new operating models will be introduced for processing data requests and permit applications.
The regulation entered into force in March 2025 and will be implemented gradually over the coming years. The parts concerning secondary use will begin to apply in March 2029.
What are the laws on which Findata bases the processing of personal data?
Findata’s legal basis for processing personal data are:
- Article 6, (1)(e) of the EU’s General Data Protection Regulation: processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the controller
- Article 4(1)(2) of the Data Protection Act: processing of data that is provided for by the law or that is directly attributable to the controller for the task prescribed by the law
We also process data belonging to special categories of personal data, formerly known as sensitive data. Such data includes, for example, a person’s health data.
The grounds for processing this kind of personal data are:
- Article 9(2)(g) of the EU General Data Protection Regulation: processing is necessary for the performance of a task carried out in the public interest or the exercise of public authority
- Section 6(1)(2) of the Data Protection Act: processing is necessary and proportionate for the performance of a task carried out in the public interest by a public authority
What is anonymisation and pseudonymisation?
Anonymisation means the transformation of personal data into a form that irreversibly prevents the identification of an individual person. This may mean, for example, removing direct identifiers and simplifying the data to a general level so that personal data cannot be reconstituted in any way.
Pseudonymisation refers to the transformation of personal data, for example into a coded form. In this case, names and personal identifiers can be removed and replaced by another unique identifier, i.e. a code. Often a code key is kept to restore direct personal data to the data. Pseudonymised data are still personal data.
Does Findata transfer data abroad?
Findata grants most permits to projects based in Finland. However, the permit holder may also be located in another EU or EEA country. Even in such cases, the data must be processed in a secure environment and only for the purposes defined in the permit.
As a rule, Findata does not transfer personal data outside the EU or EEA. Exceptions may only be made for a specific reason and when the legal requirements for data protection and information security are met.
Does Findata sell my data?
Findata does not sell data.
We operate as the Finnish Data Permit Authority, responsible for granting permits for the secondary use of social and health data only when there is a statutory basis, such as public interest, and a defined purpose, such as scientific research. Data permits are always granted for a fixed period, after which the datasets are destroyed.
We do not set our own service fees. Our charges are based on the fee decree issued by the Ministry of Social Affairs and Health.
How can I object to the secondary use of my data?
You have the right to object to the processing of your personal data for secondary use, such as research. Once you submit an objection request to Findata, we will no longer disclose your data for secondary use to permit holders.
An objection request submitted to Findata:
- is valid indefinitely
- does not remove data that has already been disclosed from existing datasets
- can be submitted via Findata’s e-service (asiointi.findata.fi), by post, or in person at THL
An objection submitted to Findata does not prevent other data controllers from disclosing your data for secondary use. Therefore, objections must be submitted separately to each data controller.
See Findata’s instructions: How to exercise your rights
What is the difference between primary and secondary use of health and social data?
Primary use means the purpose for which the data was originally saved in the customer register and/or patient register.
The primary purpose may be, for example,
- examination, treatment and rehabilitation of the patient,
- the service received by a social welfare customer,
- or the processing of benefits by the Social Insurance Institution of Finland (Kela).
Secondary use means the use of the same data for purposes other than the primary use.
Legitimate secondary purposes of use include
- scientific research,
- statistics,
- development and innovation activities,
- education,
- knowledge management,
- steering and supervision by authorities and
- the planning and reporting duty of an authority.
Different purposes of use are subject to different regulations. Only aggregated statistics from which individuals cannot be identified may be obtained for development and innovation activities.
Explore studies utilising register data
Published research results
The table below contains information on publications that have used registry data authorised by Findata. Permit holders report their publications to Findata themselves.
Submit your publications here: Report published research results
Table updated: 18 November 2025
| Year of publication | Project name | Title of publication | Authors | Publication channel | DOI / Link to publication |
|---|---|---|---|---|---|
| 2025 | Ulkosynnytinsyövän leikkauskäytännöt – vaikutus leikkauskomplikaatioihin ja onkologiseen ennusteeseen | Electrothermal bipolar vessel sealing devices are associated with lower rates of postoperative complications compared to ultrasonic devices in vulvar cancer surgery. | Mörsky MK, Kaartinen IS, Nyberg RH | PLOS ONE, 20(10): e0335266 | https://doi.org/10.1371/journal.pone.0335266 |
| 2025 | Ulkosynnytinsyövän leikkauskäytännöt – vaikutus leikkauskomplikaatioihin ja onkologiseen ennusteeseen | Oncological outcomes, surgical margins, and adjuvant treatment delays in vulvar cancer patients with or without reconstruction during primary surgery. | Mörsky MK, Nyberg RH, Vuento MH, Staff S, Kaartinen IS | International Journal of Gynecological Cancer, 35(7):101942 | https://doi.org/10.1016/j.ijgc.2025.10194 |
| 2025 | REAL-WORLD EVIDENCE STUDY OF THE IMPACT OF ASCT AND NEW DRUG TREATMENTS ON MULTIPLE MYELOMA (MM) SURVIVAL AND COMORBIDITIES COMPARED TO non-MM CONTROL POPULATION IN FINLAND BETWEEN 2000-2020 | A real-world study on the impact of infection load on mortality in multiple myeloma patients in Finland. | Anttalainen A, Havula E, Kysenius K, Toppila I, Miettinen T, Lassenius M, Silvennoinen R, Partanen A, Putkonen M | Annals of Hematology, 104(4):2373–2385 | https://doi.org/10.1007/s00277-024-06101-3 |
| 2025 | Long Acting Injectable Buprenorphine Use in Finland | Early experiences of buprenorphine long-acting injection in Finland: a retrospective cohort study. | Partanen M, Saarenpää T, Prami T, Iso-Mustajärvi I, Vehkala M, Landelius Torper O, Ryder B, Simojoki K | Poster, International Society of Addiction Medicine (ISAM) Annual Conference, Hamburg, Germany | |
| 2025 | Jakavi (ruxolitinib) treatment outcomes in acute graft versus host disease (GvHD) in real-world setting in Helsinki and Turku University Hospitals | Ruxolitinib treatment outcomes in acute graft-versus-host disease (aGvHD) in a real-world setting in Finland. | Martelin E, Kuikka A, Rajala H, Ruohonen T, Mönkkönen H, Vikkula J, Uusi-Rauva K, Salmenniemi U, Itälä-Remes M | Annals of Hematology, 104, 3451–3458 (2025) | https://doi.org/10.1007/s00277-025-06439-2 |
| 2025 | Multiple Myeloma (MM) – Characteristics, treatment praxis, Healthcare Resource Utilization (HCRU) and utilization of machine learning tools to identify novel risk factors | Evolution of treatment practices and outcomes in multiple myeloma during 2013–2022: a Finnish real-world registry study. | Partanen A, Waltari M, Vikkula J, Mattila R, Närhi K, Eeva J, Putkonen M | Acta Oncologica, 64:598–606 | https://doi.org/10.2340/1651-226X.2025.42647 |
| 2025 | Burden of illness in asthma and COPD | Burden of asthma by severity and exacerbation frequency among adult patients naive to biologic asthma therapy: a Finnish cohort study. | Kankaanranta H, Viinanen A, Klåvus A, Lassenius MI, Olsen HH, Nieminen K, Lyly A, Kauppi P, Lehtimäki L | Journal of Allergy and Clinical Immunology: Global, 4(2):100453 | https://doi.org/10.1016/j.jacig.2025.100453 |
| 2025 | Keskivaikean ja vaikean atooppisen ekseeman hoito ja dupilumabin käyttö Suomessa | Characterizing patients and treatment patterns in moderate-to-severe atopic dermatitis in Finland: a population-based study using national health data. | Remitz A, Peltonen EJ, Korhonen L, Nortamo P, Iso-Mustajärvi I, Prami T, Oinonen L, Gittens B, Von Arx LB, Porsdal V | Acta Dermato-Venereologica, 105, adv41244 | https://pubmed.ncbi.nlm.nih.gov/40271985/ |
| 2025 | Association between dental fear and the dental attendance of the family | Changes in oral health-related quality of life according to public oral health procedures in parents of young children from the FinnBrain Birth Cohort Study. | Palo K, Tolvanen M, Suominen A, Karlsson H, Karlsson L, Lahti S | Community Dentistry and Oral Epidemiology (Wiley), 53: 382-388. | https://onlinelibrary.wiley.com/doi/10.1111/cdoe.13039 |
| 2025 | Disease management, outcomes, and health care resource use associated with real-life clinical practice of diabetes and diabetic kidney disease in Finland (FinDIABREN-RWE) | Diabeteksen munuaistaudin toteaminen on puutteellista Keusoten alueella. | Laine MK, Haapala M, Uusi-Rauva K, Aakko J, Pentikäinen M, Mikkola K, Halonen N, Pulkki K, Säävuori N, Groop P-H, Metsärinne K | Suomen Lääkärilehti, 80:e43390 | https://www.laakarilehti.fi/e43390 |
| 2025 | FINHRBC – epidemiology and clinical characteristics of hormone receptor positive breast cancer patients in Finland | Real-world observational study of incidence and outcomes in an HR+/HER2– early breast cancer population with high risk of recurrence in Finland. | Singh, R., Tuominen, S., Lassenius, M.I. et al. | Oncology and Therapy 13, 185–200 (2025) | https://doi.org/10.1007/s40487-024-00324-0 |
| 2025 | Patient characteristics and treatment landscape of metastatic castration resistant prostate cancer in Finland | Real-world treatment patterns and survival outcomes in men with metastatic castration-resistant prostate cancer in Finland: a national, population-based cohort study. | Rannikko A, Hölsä O, Ågesen T, Ekman M, Mattila R | Acta Oncologica, 64:173–178 | https://doi.org/10.2340/1651-226X.2025.42173 |
| 2025 | The SORREL study – Prevalence, Characteristics, and Burden of Nasal Polyps in Chronic Rhinosinusitis Patients in Finland | Predictors of revision endoscopic sinus surgery in Finnish patients with chronic rhinosinusitis with nasal polyps. | Toppila-Salmi S, Lyly A, Simin J, Aakko J, Haugom Olsen H, Lehtimäki L | Clinical and Translational Allergy, 2025;e70032 | https://onlinelibrary.wiley.com/doi/10.1002/clt2.70032 |
| 2025 | SOTE-PALVELUT LÄPINÄKYVIKSI: Palvelu- ja tietointegraatio yhtenäisen tietomallin ja yhdistetyn tietopohjan avulla | Changes in depression medication following the initial assessment by specialised psychiatry services in the Helsinki-Uusimaa Region | Juntura J, Näätänen P, Joffe G, Ekelund J, Leskelä R-L, Ito T, Rive B, Godinov Y, Eriksson I, Torkki P | EPA 2025 (Conference abstract) | |
| 2025 | Attention deficit hyperactivity disorder (ADHD) care in Finland | Use of Antidepressants Decreased After Initiation of ADHD Treatment in Adults—A Finnish Nationwide Register Study Describing Use of ADHD and Non-ADHD Medication in People With and Without ADHD | Westman E, Prami T, Kallio A, Iso-Mustajärvi I, Jukka J, Raittinen P, Korhonen MJ, Puustjärvi A, Leppämäki S | Acta Psychiatrica Scandinavica 152, no. 3 (2025): 203–215 | https://doi.org/10.1111/acps.70007 |
| 2025 | Työkyvyn tila Suomessa | Työkyvyn ja työhön osallistumisen kokonaisvaltainen tarkastelu ja palvelu- ja etuusjärjestelmän reunaehdot : Tutkimustuloksia päätöksenteon tueksi | Henriksson M, Mesiäislehto M, Ahola E, Joensuu M, Kärkkäinen S, Laaksonen J, Saikku P, Siltala V, Turunen J | Sosiaali- ja terveysministeriön raportteja ja muistioita 2025:5 | http://urn.fi/URN:ISBN:978-952-00-8681-7 |
| 2025 | Työkyvyn tila Suomessa | Tutkimus: työkykyä on tuettava työelämän muutoksissa ennen kuin työkyvyttömyysriskejä ilmaantuu | Sosiaali- ja terveysministeriö | Sosiaali- ja terveysministeriö | https://stm.fi/-/tutkimus-tyokykya-on-tuettava-tyoelaman-muutoksissa-ennen-kuin-tyokyvyttomyysriskeja-ilmaantuu |
| 2024 | REAL-WORLD EVIDENCE STUDY OF THE IMPACT OF ASCT AND NEW DRUG TREATMENTS ON MULTIPLE MYELOMA (MM) SURVIVAL AND COMORBIDITIES COMPARED TO non-MM CONTROL POPULATION IN FINLAND BETWEEN 2000-2020 | Comorbidities and survival of multiple myeloma patients diagnosed in Finland between 2000 and 2021. | Kysenius K, Anttalainen A, Toppila I, Miettinen T, Lassenius M, Lievonen J, Partanen A, Silvennoinen R, Putkonen M | Annals of Hematology, 103, 2931–2943 (2024) | https://doi.org/10.1007/s00277-024-05865-y |
| 2024 | Multiple Myeloma (MM) – Characteristics, treatment praxis, Healthcare Resource Utilization (HCRU) and utilization of machine learning tools to identify novel risk factors | A real-world study of multiple myeloma patients with at least 3 prior treatment lines and triple class exposed disease in Finland: outcomes and need for healthcare resource use. | Putkonen M, Kivioja A, Vikkula J, Waltari M, Mattila R, Närhi K, Eeva J, Partanen A | Value in Health, 27(12):S2 | https://www.ispor.org/heor-resources/presentations-database/presentation/euro2024-4018/143359 |
| 2024 | Raskauden aikaisen metformiini-altistuksen pitkäaikaiset vaikutukset lapseen Suomessa – CLUE-tutkimus | Metformin in pregnancy and risk of adverse long-term outcomes: a register-based cohort study. | Brand KMG, Saarelainen L, Sonajalg J, Boutmy E, Foch C, Vääräsmäki M, et al. | BMJ Open Diabetes Research & Care, 10(1):e002363 | https://drc.bmj.com/content/10/1/e002363 |
| 2024 | Raskauden aikaisen metformiini-altistuksen pitkäaikaiset vaikutukset lapseen Suomessa – CLUE-tutkimus | Metformin in pregnancy and risk of abnormal growth outcomes at birth: a register-based cohort study. | Brand KM, Thoren R, Sõnajalg J, Boutmy E, Foch C, Schlachter J, et al. | BMJ Open Diabetes Research & Care, 10(6):e003056 | https://drc.bmj.com/content/10/6/e003056 |
| 2024 | Endometrial Cancer Real World Evidence Study in Finland: A Real-World study on patient characteristics, treatment patterns and outcomes of recurrent or advanced endometrial cancer patients in Finland | Healthcare resource utilisation (HCRU) and medical costs among patients with endometrial cancer in a real-world setting in Finland (the FIRE study). | Mascialino B, Aakko J, Kysenius K, Tuominen S, Idänpään-Heikkilä J, Käkelä S, Tikka S, Schneider D, Hietanen S, Lassus H, Auranen A | Poster, ISPOR Europe Meeting, Barcelona, Spain | |
| 2024 | TYÖOTE – HANKKEEN VAIKUTTAVUUSTUTKIMUS – Rekisteripohjainen arviointitutkimus vastuullisen asiakasohjausmallin etuisuusmaksu- ja tuottavuusvaikutuksista | Effectiveness of the Coordinated Return to Work model after orthopaedic surgery for lumbar discectomy and hip and knee arthroplasty: a register-based study. | Lavikainen P, Heiskanen J, Jalkanen K, Lehtimäki A-V, Vehkala S, Kangas P, Husman K, Vohlonen I, Martikainen J | Occupational and Environmental Medicine, 81:150–157 | https://doi.org/10.1136/oemed-2023-109276 |
| 2024 | Työkykyriskin ennustaminen ja korkeariskisten henkilöiden ryhmittely ennaltaehkäisevän työterveyshuollon tueksi | Associations of depressive symptoms and psychosocial working conditions with sickness absences in a Finnish cohort of 11,495 employees. | Anttila A, Nuutinen M, Van Gils M, Pekki A, Sauni R | Preventive Medicine Reports, 47 | https://authors.elsevier.com/sd/article/S2211-3355(24)00314-0 |
| 2024 | Kystisen fibroosin epidemiologia ja hoito Suomessa | Cystic fibrosis patient characteristics and healthcare resource utilisation in Finland using linked registries. | Malmivaara K, Pölkki M, Prami T, Raittinen P, Heikkilä E, Aalto A, Dunder T, Elenius V, Sandström K, McGarry LJ | Heliyon, 10:e33439 | https://www.cell.com/action/showPdf?pii=S2405-8440%2824%2909470-2 |
| 2024 | Ympäristö, geenit ja syöpäriski: seurantatutkimuksia Suomalaisessa kaksoskohortissa. | Novel epigenetic biomarkers for hematopoietic cancer found in twins. | Clemmensen SB, Frederiksen H, Mengel-From J, Heikkinen A, Kaprio J, Hjelmborg JV | Acta Oncologica, 63:710–717 | https://doi.org/10.2340/1651-226X.2024.40700 |
| 2024 | Finnish Diabetes Control study – FinDiCon | Increasing clinical inertia in basal insulin initiations in people living with type 2 diabetes in Finland | 23rd Nordic Congress of General Practice 2024; Turku, Finland; 11–14 June 2024 | ||
| 2024 | Finnish Diabetes Control study – FinDiCon | Trends in demographics and diabetes-related complications in people living with type 1 diabetes between 2014 and 2021 in Finland | 60th Annual Meeting European Association for the Study of Diabetes; Madrid, Spain; 10–13 September 2024 | ||
| 2024 | Sähköisten reseptien hyödyt ja kustannukset | Information Technology, Improved Access, and Use of Prescription Drugs | Böckerman P, Kortelainen M, Laine LT, Nurminen M, Saxell T | Journal of the European Economic Association 23(1):396–430 | https://doi.org/10.1093/jeea/jvae034 |
| 2024 | Sähköisten reseptien hyödyt ja kustannukset | Antidepressant Persistence Before and After the Introduction of Online Renewal | Kovalainen O-T | Master’s thesis, University of Helsinki | https://ethesis.helsinki.fi/repository/handle/123456789/2/browse?type=author&value=Kovalainen%2C+Olli-Tuomas |
| 2024 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | New reference limits for cardiac troponin T and N-terminal b-type natriuretic propeptide in elders | Heikkilä E, Katajamäki T, Salminen M, Irjala K, Viljanen A, Koivula M-K, Pulkki K, Isoaho R, Kivelä S-L, Viitanen M, Löppönen M, Vahlberg T, Viikari L | Clinica Chimica Acta 2024;556:117844 | https://doi.org/10.1016/j.cca.2024.117844 |
| 2024 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | Predicting successful ageing among older adults seems possible even as far as two decades ahead | Viljanen A, Salminen M, Irjala K et al. | BMC Geriatrics 2024;24:481 | https://doi.org/10.1186/s12877-024-02481-5 |
| 2024 | SOTE-PALVELUT LÄPINÄKYVIKSI: Palvelu- ja tietointegraatio yhtenäisen tietomallin ja yhdistetyn tietopohjan avulla | Societal costs of depression and outcomes of care in Finland | Näätänen P, Juntura J, Joffe G, Ekelund J, Nuutinen M, Leskelä R-L, Ito T, Rive B, Godinov Y, Eriksson I, Torkki P | ICHOM 2024 (Conference abstract) | |
| 2024 | Elämänkokemukset, ylisukupolviset prosessit ja perinataalivaiheen sosioekonomiset terveyserot (Life course experiences, intergenerational processes, and socioeconomic health inequalities in perinatal period) | Seasonality of Birth Weight in Singleton Full-term Births in Finland | Orderud H., Eskelinen N., Lindberg M. | Finnish Yearbook of Population Research, 57, 21–46 | https://doi.org/10.23979/fypr.136379 |
| 2024 | Elämänkokemukset, ylisukupolviset prosessit ja perinataalivaiheen sosioekonomiset terveyserot (Life course experiences, intergenerational processes, and socioeconomic health inequalities in perinatal period) | Low and very low birthweight disadvantage in compulsory education achievement and transition to upper secondary education | Lindberg M | . Child Care Health Dev, 50(2):e13243 | https://doi.org/10.1111/cch.13243 |
| 2024 | Kasvaingeenitutkimus | Cancer incidence following non-neoplastic medical conditions | Sipilä LJ, Tanskanen T, Heikkinen S, Seppä K, Aavikko M, Ravantti J, Aaltonen LA, Pitkäniemi J | Acta Oncologica, 63(1), 841–849 | https://doi.org/10.2340/1651-226X.2024.40757 |
| 2024 | Kasvaingeenitutkimus | Lynch syndrome-associated and sporadic microsatellite unstable colorectal cancers | Martin S, Katainen R, Taira A, Välimäki N, Ristimäki A, Seppälä T, Renkonen-Sinisalo L, Lepistö A, Tahkola K, Mattila A, Koskensalo S, Mecklin JP, Rajamäki K, Palin K, Aaltonen LA. | Human Molecular Genetics, 33(21):1858–1872 | https://doi.org/10.1093/hmg/ddae124 |
| 2024 | Kasvaingeenitutkimus | Non-stem cell lineages as an alternative origin of intestinal tumorigenesis | Verhagen MP., Joosten R., Schmitt M., Välimäki N., ym. | Nat Genet 56, 1456–1467 | https://doi.org/10.1038/s41588-024-01801-y |
| 2024 | Kasvaingeenitutkimus | Detection of a major Lynch Syndrome-causing MLH1 founder variant in a large-scale genotyped cohort | Sipilä LJ ym. | Familial Cancer 23, 647–652 | https://doi.org/10.1007/s10689-024-00400-4 |
| 2024 | Kasvaingeenitutkimus | Genome-wide somatic mutation analysis of sinonasal adenocarcinoma with and without wood dust exposure | Sipilä LJ ym. | Genes and Environ 46, 12 | https://doi.org/10.1186/s41021-024-00306-8 |
| 2024 | Trends in operative delivery rates in Estonia and Finland. | Caesarean section and operative vaginal delivery in Estonia and Finland from 1992 to 2016 | Sildver K., Veerus P., Gissler M., Lang K., Pisarev H. | European Journal of Public Health, 34(6):1205–1209 | https://doi.org/10.1093/eurpub/ckae162 |
| 2024 | Reseptien uudistaminen ja lääkehoidon seuranta – Rekisteritutkimus potilasta kohtaamatta uudistetuista lääkityksistä ja terveydenhuollon palvelujen käytöstä | Register-based study on prescription renewal without the prescriber meeting the patient | Rönngård-Jalkanen A., Aarnio E., Saastamoinen L., Timonen J. | Basic Clin Pharmacol Toxicol, 135(3): 321-333 | https://doi.org/10.1111/bcpt.14049 |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen – tuloksia työikäisen väestön ryhmittelystä | Turunen J, Siltala V, Henriksson M, Ahola E, Joensuu M | Työterveyslaitos, Työelämätieto-palvelu | https://www.tyoelamatieto.fi/fi/aineistot/tyokyky-ja-tyohon-osallistuminen-tuloksia-tyoikaisen-vaeston-ryhmittelysta |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen – vertailutuloksia työikäisen väestön ryhmittelystä | Turunen J, Siltala V, Henriksson M, Ahola E, Joensuu M | Työterveyslaitos, Työelämätieto-palvelu | https://www.tyoelamatieto.fi/fi/analyysit/tyokyky-ja-tyohon-osallistuminen-vertailutuloksia-tyoikaisen-vaeston-ryhmittelysta |
| 2024 | Työkyvyn tila Suomessa | Työikäiset ryhmiteltiin uudella tavalla – ryhmä- ja hyvinvointialuekohtaiset erot työhön osallistumisessa isoja | Työterveyslaitos | Työterveyslaitos | https://www.ttl.fi/ajankohtaista/tiedote/tyoikaiset-ryhmiteltiin-uudella-tavalla-ryhma-ja-hyvinvointialuekohtaiset-erot-tyohon |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen | Henriksson M | HVA työikäiset verkosto | |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen – vertailutuloksia työikäisen väestön ryhmittelystä | Turunen J | Kela seminaari | |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen | Henriksson M | Kela ja TTL verkkoseminaari | https://www.kela.fi/yhteistyokumppanit-koulutustallenteet#verkkoseminaari-1752024-kohti-yhteista-ymmarrysta-tyokyvysta-ja-sen-tukemisesta |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen | Henriksson M | THL seminaari | |
| 2024 | Työkyvyn tila Suomessa | Work Ability and Work Participation: Findings from a Register Study on Finland’s Working-Age Population | Turunen J, Siltala V, Henriksson M, Joensuu M, Ahola E | Nordic Working Life Conference, Roskilde, Denmark | |
| 2024 | Työkyvyn tila Suomessa | From Work Ability to Work Potential | Henriksson M, Joensuu M, Turunen J, Ahola E, Siltala V | 16th ESA Conference Porto, Portugal | |
| 2024 | Työkyvyn tila Suomessa | Mielenterveys sosiaali- ja terveysalalla sekä taide-, kulttuuri- ja tapahtuma-aloilla | Ahola E, Ropponen A | Työterveyslaitos, Työelämätieto-palvelu | https://www.tyoelamatieto.fi/fi/aineistot/mielenterveys-sosiaali-ja-terveysalalla-seka-taide-kulttuuri-ja-tapahtuma-aloilla |
| 2024 | Työkyvyn tila Suomessa | Sosiaali- ja terveysalalla sekä taide-, kulttuuri- ja tapahtuma-aloilla työskennelleiden mielenterveyden ja poissaolojen kehitys on vastaava kuin muilla aloilla | Ropponen A, Varje P | Työterveyslaitos, Työelämätieto-palvelu | https://www.tyoelamatieto.fi/fi/analyysit/sosiaali-ja-terveysalalla-seka-taide-kulttuuri-ja-tapahtuma-aloilla-tyoskennelleiden-mielenterveyden-ja-poissaolojen-kehitys-on-vastaava-kuin-muilla-aloilla |
| 2024 | Työkyvyn tila Suomessa | The role of mental health related healthcare use on work participation among unemployed | Salonen L, Solovieva S, Junna L, Pitkänen J, Kauhanen A, Leinonen T | 3rd International PEROSH Conference on Prolonging Working Life | |
| 2024 | Työkyvyn tila Suomessa | The role of mental health related healthcare use in employment and benefit use after unemployed | Salonen L, Solovieva S, Junna L, Pitkänen J, Kauhanen A, Leinonen T | European Journal of Public Health | https://doi.org/10.1093/eurpub/ckae144.726 |
| 2024 | Työkyvyn tila Suomessa | Hyvinvointialue työhön osallistumisen ekosysteemissä | Henriksson M, Joensuu M, Turunen J, Ahola E, Ervasti J, Siltala V | Työelämän tutkimuspäivät 2024 | |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen – vertailutuloksia työikäisen väestön ryhmittelystä | Turunen J, Siltala V, Ahola E, Henriksson M, Ahtinen S, Ervasti J, Joensuu M | Työelämän tutkimuspäivät 2024 | |
| 2024 | Työkyvyn tila Suomessa | The role of mental health related healthcare use in employment and benefit use after unemployed | Salonen L, Solovieva S, Junna L, Pitkänen J, Kauhanen A, Leinonen T | European Public Health Conference | |
| 2024 | Työkyvyn tila Suomessa | Työkyky ja työhön osallistuminen: Tuloksia ja havaintoja työkykyohjelman laajennoksen tutkimusosuudesta | Henriksson M, Joensuu M, Turunen J, Ahola E, Ervasti J, Siltala V | THL seminaari | https://innokyla.fi/sites/default/files/2024-11/Mikko%20Henriksson%20s%20pidennetty.pdf |
| 2024 | Työkyvyn tila Suomessa | Työikäisten työkyky ja työhön osallistuminen | Henriksson M, Siltala V | THL seminaari | https://innokyla.fi/sites/default/files/2024-12/TTL%20webinaari%203.12.2024.pdf |
| 2023 | FinMDS | Characteristics, treatment and outcomes of myelodysplastic syndrome in two Finnish hospital districts. | Tuominen S, Miettinen T, Dünweber C | medRxiv 2023.10.06.23296265 | https://doi.org/10.1101/2023.10.06.23296265 |
| 2023 | Ympäristö, geenit ja syöpäriski: seurantatutkimuksia Suomalaisessa kaksoskohortissa. | The association between night shift work and breast cancer risk in the Finnish twins cohort | Schernhammer E, Bogl L, Hublin C, Strohmaier S, Zebrowska M, Erber A, Haghayegh S, Papantoniou K, Ollikainen M, Kaprio J | Eur J Epidemiol. 38(5):533-543 | https://doi.org/10.1007/s10654-023-00983-9 |
| 2023 | Finnish Diabetes Control study – FinDiCon | Alle 60-vuotiaiden tyypin 2 diabeteksen hoitotasapaino on keskimääräistä huonompi | Vessari H, Luoto H, Aalto A, Peltonen E. J, Iso-Mustajärvi I, Raittinen P, Prami T, Saraheimo M, Valle T.T, Saukkonen T | Lääkärilehti 2023 | https://www.laakarilehti.fi/tieteessa/alkuperaistutkimukset/alle-60-vuotiaiden-tyypin-2-diabeteksen-hoitotasapaino-on-keskimaaraista-huonompi/ |
| 2023 | Valinnanvapaus ja kilpailu julkisessa erikoissairaanhoidossa | Improving Performance Through Allocation and Competition: Evidence from a Patient Choice Reform | Kortelainen M, Laine LT, Lavaste K, Saxell T, Siciliani L | VATT Working Papers 156 | https://vatt.fi/julkaisu?pubid=URN%3ANBN%3Afi-fe20231003138612 |
| 2023 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | A novel easy-to-use index to predict institutionalization and death in older population – a 10-year population-based follow-up study | Heikkilä E, Salminen M, Viljanen A, Katajamäki T, Koivula M-K, Pulkki K, Isoaho R, Kivelä S-L, Viitanen M, Löppönen M, Vahlberg T, Viikari L, Irjala K | BMC Geriatrics 2023;23:80 | https://doi.org/10.1186/s12877-023-03760-1 |
| 2023 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | Re-examination of successful agers with lower biological than chronological age still after a 20-year follow-up period | Viljanen A, Salminen M, Irjala K, Korhonen P, Vahlberg T, Viitanen M, Löppönen M, Viikari L. | BMC Geriatrics 2023;23:128 | https://doi.org/10.1186/s12877-023-03844-y |
| 2023 | Economic burden of medicines on households: De-commodification and re-commodification (DE-RE) | Austerity, economic hardship and access to medications: a repeated cross-sectional population survey study, 2013–2020 | Aaltonen K | J Epidemiol Community Health 2023;77:160-167 | https://doi.org/10.1136/jech-2022-219706 |
| 2023 | Economic burden of medicines on households: De-commodification and re-commodification (DE-RE) | Lääkkeistä tinkiminen yleistyi hallituksen kovien säästötoimien aikaan | Aaltonen K | INVEST Blog | https://blogit.utu.fi/invest/2023/01/31/laakkeista-tinkiminen-yleistyi-hallituksen-kovien-saastotoimien-aikaan/ |
| 2023 | Elämänkokemukset, ylisukupolviset prosessit ja perinataalivaiheen sosioekonomiset terveyserot (Life course experiences, intergenerational processes, and socioeconomic health inequalities in perinatal period) | Birth Weight, Maternal Education, and NEET Status in Young Adulthood: Evidence Using Sibling Fixed-effects | Eskelinen N., Salonen L., Kotimäki S., Lindberg M., Härkönen J. | INVEST Working Paper 79, SocArXiv | https://doi.org/10.31235/osf.io/epfbz |
| 2023 | Elämänkokemukset, ylisukupolviset prosessit ja perinataalivaiheen sosioekonomiset terveyserot (Life course experiences, intergenerational processes, and socioeconomic health inequalities in perinatal period) | Low and Very Low Birthweight Disadvantage in Compulsory Education Achievement… | Lindberg M | INVEST Working Paper 76, SocArXiv | https://doi.org/10.31235/osf.io/dk369 |
| 2023 | Trends in operative delivery rates in Estonia and Finland. | Cesarean section trends from 1992 to 2016 in Estonia and Finland | Sildver K., Veerus P., Lang K., Pisarev H., Gissler M. | Acta Obstet Gynecol Scand. 2023; 102: 1007-1013 | https://doi.org/10.1111/aogs.14609 |
| 2023 | Entisten huippu-urheilijoiden sairastuvuus- ja kuolleisuustutkimus; fyysisesti aktiivisen elämäntavan pitkäaikaisvaikutukset terveyteen, toimintakykyyn ja kansansairauksien riskitekijöihin. | Dementia in former amateur and professional contact sports participants: population-based cohort study, systematic review, and meta-analysis | Batty GD, Frank P, Kujala UM, Sarna SJ, Valencia-Hernández CA, Kaprio J | eClinicalMedicine, Volume 61, 102056 | https://doi.org/10.1016/j.eclinm.2023.102056 |
| 2023 | Entisten huippu-urheilijoiden sairastuvuus- ja kuolleisuustutkimus; fyysisesti aktiivisen elämäntavan pitkäaikaisvaikutukset terveyteen, toimintakykyyn ja kansansairauksien riskitekijöihin. | Suicide and depression in former contact sports participants: population-based cohort study, systematic review, and meta-analysis | Batty GD, Frank P, Kujala UM, Sarna SJ, Kaprio J | EClinicalMedicine, Volume 60, 102026 | https://doi.org/10.1016/j.eclinm.2023.102026 |
| 2022 | Ympäristö, geenit ja syöpäriski: seurantatutkimuksia Suomalaisessa kaksoskohortissa. | Differences in DNA Methylation-Based Age Prediction Within Twin Pairs Discordant for Cancer | Bode HF, Heikkinen A, Lundgren S, Kaprio J, Ollikainen M | Twin Res Hum Genet. 25(4-5):171-179 | https://doi.org/10.1017/thg.2022.32 |
| 2022 | Sähköisten reseptien hyödyt ja kustannukset | Information Integration, Coordination Failures, and Quality of Prescribing | Böckerman P, Laine LT, Nurminen M, Saxell T | The Journal of Human Resources (published ahead of print December 7, 2022) | https://jhr.uwpress.org/content/early/2022/12/01/jhr.0921-11910R2 |
| 2022 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | Ceramides and phosphatidylcholines associate with cardiovascular diseases in the elderly | Katajamäki T, Koivula M-K, Hilvo M, Lääperi M, Salminen M, Viljanen A, Heikkilä E, Löppönen M, Iso-aho R, Kivelä S-L, Jylhä A, Viikari L, Irjala K, Pulkki K, Laaksonen R | Clin Chem 2022. | https://doi.org/10.1093/clinchem/hvac158 |
| 2022 | Kehitysvammaisten lääkehoito ja asumispalvelut Suomessa. | Medicine use in people with intellectual disabilities: a Finnish nationwide register study | Nurminen F, Rättö H, Arvio M, Teittinen A, Vesala H. T., Saastamoinen L. | Journal of Intellectual Disability Research, 67: 1291–1305 | https://doi.org/10.1111/jir.12988 |
| 2022 | Uudenlaisen, systeemisen lääkehoidon persistenssi ja adherenssi keskivaikean tai vaikean läiskä- tai nivelpsoriaasin hoidossa – Rekisteripohjainen kohorttitutkimus Suomessa ja Ruotsissa | Persistence of advanced systemic pharmacological treatment of moderate-to-severe psoriasis among bio-naïve patients | G. Tskhvarashvili, K. Aher, I. Sveide, U. Katus, A. Westerlund, F. Hoti, C. Wennerström, F. Hassan, J. Lee, C. Hermanrud, I. Johnsson, A. Passey, R. Nissinen, S. Polesie, T. Mälkönen, L. Saarelainen | J Eur Acad Dermatol Venereol. 2025; 39(Suppl. 1): 50–64 | https://onlinelibrary.wiley.com/doi/10.1111/jdv.20198 |
| 2022 | Long Acting Injectable Buprenorphine Use in Finland | Early experience of buprenorphine long-acting injection in Finland: a retrospective cohort study | 15th European Congress on Heroin Addiction, Pisa | ||
| 2022 | Entisten huippu-urheilijoiden sairastuvuus- ja kuolleisuustutkimus; fyysisesti aktiivisen elämäntavan pitkäaikaisvaikutukset terveyteen, toimintakykyyn ja kansansairauksien riskitekijöihin. | Longitudinal Associations of High-Volume and Vigorous-Intensity Exercise With Hip Fracture Risk in Men | Korhonen MT, Kujala UM, Kettunen J, Korhonen OV, Kaprio J, Sarna S, Törmäkangas T | J Bone Miner Res, (8):1562-1570 | https://doi.org/10.1002/jbmr.4624 |
| 2021 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | A practical laboratory index to predict institutionalization and mortality – an 18-year population-based follow-up study | Heikkilä E, Salminen M, Viljanen A, Katajamäki T, Koivula M-K, Pulkki K, Isoaho R, Kivelä S-L, Viitanen M, Löppönen M, Vahlberg T, Viikari L, Irjala K | BMC Geriatrics, 21, 139 (2021) | https://doi.org/10.1186/s12877-021-02077-1 |
| 2021 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | Subjective and objective health predicting mortality and institutionalization: an 18-year population-based follow-up study | Viljanen A, Salminen M, Irjala K, Heikkilä E, Isoaho R, Kivelä S-L, Korhonen P, Vahlberg T, Viitanen M, Wuorela M, Löppönen M, Viikari L. | BMC Geriatrics 2021;21:358 | https://doi.org/10.1186/s12877-021-02311-w |
| 2021 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | Chronic conditions and multimorbidity associated with institutionalization among Finnish community-dwelling older people | Viljanen A, Salminen M, Irjala K, Heikkilä E, Isoaho R, Kivelä S-L, Korhonen P, Vahlberg T, Viitanen M, Wuorela M, Löppönen M, Viikari L | Eur Geriatr Med 2021. | https://doi.org/10.1007/s41999-021-00535-y |
| 2021 | Älykäs luu – Koneoppimiseen perustuva DXA-kuvien analyysi potilaiden diagnostiikassa. | Detecting pathological features and predicting fracture risk from dual-energy X-ray absorptiometry images using deep learning | Nissinen T, Suoranta S, Saavalainen T, Sund R, Hurskainen O, Rikkonen T, Kröger H, Lähivaara T, Väänänen SP | Bone reports 2021 101070 | https://doi.org/10.1016/j.bonr.2021.101070 |
| 2020 | Valinnanvapaus ja kilpailu julkisessa erikoissairaanhoidossa | Effects of Maternity Ward Closures on Maternal Health in Finland | Hägg M | University of Eastern Finland, Master’s thesis | https://erepo.uef.fi/bitstream/handle/123456789/23053/urn_nbn_fi_uef-20200932.pdf |
| 2020 | Sähköisten reseptien hyödyt ja kustannukset | Information Integration, Coordination Failures, and Quality of Prescribing | Böckerman P, Laine LT, Nurminen M, Saxell T | VATT Working Papers 135 | https://vatt.fi/julkaisu?pubid=URN%3AISBN%3A978-952-274-260-5 |
| 2020 | lkääntyneiden sydän- ja verisuonisairastuvuus ja kuolleisuus – seurantatutkimus | Frailty, walking ability and self-rated health predicting institutionalization; an 18-year follow-up among Finnish community-dwelling older people | Viljanen A, Salminen M, Korhonen P, Irjala K, Wuorela M, Isoaho R, Kivelä S-L, Viitanen M, Löppönen M, Viikari L | Aging Clin Exp Res 2020 | https://doi.org/10.1007/s40520-020-01551-x |
| 2020 | Työkyvyn tila Suomessa | Labor Market Participation Before and After Long-Term Part-Time Sickness Absence in Finland: A Population-Based Cohort Study | Ervasti J, Kausto J, Koskinen A, Pentti J, Vahtera J, Joensuu M, Turunen J, Oksanen T, Kivimäki M | Journal of Occupational and Environmental Medicine | https://journals.lww.com/joem/fulltext/2020/04000/labor_market_participation_before_and_after.11.aspx |
Flagship research goes deep inside the cell – with the aim of producing breakthroughs in individual cancer treatment by combining genetic data and other patient health data
The iCAN research team is producing new information and seeking solutions to… Read more Flagship research goes deep inside the cell – with the aim of producing breakthroughs in individual cancer treatment by combining genetic data and other patient health dataA team of researchers is bridging the gap between clinical research and registry studies with the aim of reinventing cancer drug research
Heidi Loponen, Senior Scientific Consultant at MedEngine Oy, uses register data in… Read more A team of researchers is bridging the gap between clinical research and registry studies with the aim of reinventing cancer drug researchResearchers analyse the patient and registry data of thousands of diabetics in order to improve their quality-of-life – around a third of type 1 diabetics suffer from kidney disease
The FinnDiane follow-up study, which has been ongoing for more than 20… Read more Researchers analyse the patient and registry data of thousands of diabetics in order to improve their quality-of-life – around a third of type 1 diabetics suffer from kidney diseaseResearch project examines young people’s access to psychiatric care: the open dialogue approach is bringing mental health work up to the present day
A research project is studying the open dialogue treatment model, in which… Read more Research project examines young people’s access to psychiatric care: the open dialogue approach is bringing mental health work up to the present day
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For more information about your rights under the GDPR and how to exercise them, visit the Data Protection Ombudsman’s website (tietosuoja.fi)
What data do my rights cover?
The right to access one’s data, correct one’s data, and restrict the processing of one’s data applies only to social and health data held by Findata at the time the request is made.
What data does Findata have?
Except for our ready-made datasets, we do not permanently store registry data. Instead, we serve as an intermediary between permit applicants and data controllers, such as wellbeing services counties.
We retain personal data temporarily during the process of compiling, preprocessing, and verifying the data received from data controllers, before it is disclosed to the permit recipient. These data are stored for four months after they have been delivered to the permit holder.
Ready-made datasets
Ready-made datasets are precompiled and preprocessed datasets for which Findata permanently acts as the data controller.
What does the right to object mean?
You have the right to object to Findata disclosing your data for secondary purposes, such as research. Note that an objection request is controller-specific. This means that an objection submitted to Findata does not prevent other data controllers listed in the Secondary Use Act from disclosing your data for secondary use.
If you wish to prohibit the use of your data for all secondary use in Finland, you must submit an objection request separately to each data controller listed in the Secondary Use Act. There is currently no centralised system in Finland for objecting to the secondary use of data.
An objection request is valid indefinitely from the date it is processed. It is not retroactive, meaning your data cannot be removed from datasets that have already been disclosed to permit holders before the request was submitted.
How is the right to object implemented at Findata?
When you object to the secondary use of your data through Findata:
- Your request is recorded in the case management system maintained by the Finnish Institute for Health and Welfare (THL).
- Your data will be removed from datasets received by Findata based on your personal identity code. Therefore, we must retain and process your personal identity code to implement the request.
- More information about data controllers and the content of registries: Data
- General instructions on objecting to the use of personal data: If you do not want your data processed (tietosuoja.fi)
Important considerations
- The Digital and Population Data Services Agency (DVV) does not process objections related to the disclosure of personal data for purposes defined in the Secondary Use Act.
- Restrictions on the disclosure of data in the Population Information System are governed by the Act on the Population Information System and the Digital and Population Data Services Agency’s Certification Services (§28).
- Read more (in Finnish): Tietojen luovuttamisen kieltäminen (dvv.fi)
- If you need access to your personal data, for example, to prepare, present, or defend a legal claim, you should submit the request directly to the original data controller.
Minors and data subject rights
Minors have the same rights as adults when processing personal data under the Secondary Use Act. The basic principle is that a minor who is able to form their own views is free to express their views on the use and processing of their personal data.
Can a child decide themselves whether to make requests?
In the case of minors, it is not possible to issue specific recommendations on the age at which a minor can independently decide on the use and processing of their data.
If taking into account their age and level of development the child is able to understand the matter and its significance, then they can decide on the exercise of their rights. Of course, this is not possible for very young children, but the older the child or young person is, the more decision-making power they have.
The guardian may make a request on behalf of the child
The guardian of an underage child may make, on the behalf of the child, a request that relates to the child’s rights as a data subject. It is recommended that the guardians discuss the request with the child and hear the child’s opinion on the matter before making the request, even if the child is not yet able to make a decision on the matter.
Inform the child
The guardians should inform the underage child of the request made on their behalf at the latest when the child is at an age and level of development where they can understand the matter. This is particularly important in situations where guardians have objected to the processing of personal data on behalf of a minor.
Objection requests are valid until further notice and thus continue to be valid even after the minor becomes an adult.
When is the exercise of rights not possible?
As a general rule, the rights of data subjects are not restricted and the data subject’s requests are complied with.
In some rare cases, researchers may be allowed to limit the rights of data subjects if the data is used for scientific or statistical studies. When this happens:
- The research project must prepare a separate impact assessment.
- This assessment must be submitted to the Office of the Data Protection Ombudsman before the project begins.
- We will evaluate whether the data can be disclosed despite the data subject’s objection.
- While the assessment is under review, we limit the processing of personal data.
Permit applicants may also restrict the right to object to data processing for educational purposes, but only if:
- The case is rare and the data is essential for the educational activity.
- The educator informs all participants about their legal duty of confidentiality and the consequences of violating it.
If a data subject objects to Findata processing their personal data, we will stop disclosing their data to permit holders. However, if the data was already disclosed before the objection, it cannot be deleted.
How do I exercise my rights?
You can exercise your rights related to the data processed by Findata through our e-service.
Findata must verify the identity of the person exercising their rights to ensure that actions are directed at the correct individual’s data. hat’s why our e-service uses Suomi.fi authentication.
Suomi.fi authentication is a secure login method used by Finnish public services. You can log in using:
- Online banking credentials
- A mobile certificate
- A smart card
Once your identity is verified, you can safely use our electronic services. For more details, visit suomi.fi.
How to exercise your rights in Findata’s e-service
- Go to asiointi.findata.fi.
- Click “Login”.
- Select Suomi.fi as the authentication method.
- If you are logged in using another method, log out first.
- Authenticate using online banking credentials, a mobile certificate, or a smart card.
- After authentication, click “Continue to service”.
- Select the appropriate form from the list by clicking the blue “Fill in the application” button.
- To object to the processing of personal data, select “GDPR –Request to object to the processing of personal data”.
- To request access to your personal data, select “GDPR – Request to access your personal data”.
- Fill in the form carefully.
- If you are submitting a request on behalf of a minor child or a person under guardianship, select “No” under “Is the personal identification number of the person who completed the application?” and complete the form accordingly.
- Finally, click “Submit application”.
- Depending on your device, the button may be on the right side or below the form.
If you want to exercise multiple rights or act on behalf of others, complete and submit all relevant forms separately for each person.
To receive notifications about your request:
- Click your name at the top of the e-service.
- Add your email address.
- Click “Save”.
Exercising your rights without using Findata’s e-service
If you cannot or do not wish to use Findata’s e-service, print out and use these forms:
You have the option to submit a request in person or by mail. See step-by-step instructions below.
Submitting a GDPR request in person
- Print and complete the request form.
- Visit the reception of the National Institute for Health and Welfare (THL) in Helsinki or Kuopio.
- Bring an identity document for verification.
- THL office addresses are available on THL’s website (thl.fi).
If you are submitting a request on behalf of a minor child or a person under guardianship, you must include a certificate of child custody obtained from the Population Information System. The request must align with the child’s presumed will and serve the child’s best interests. In cases of joint custody, the request must be made and signed by both guardians.
Submitting a GDPR request by mail
- Print and complete the request form.
- Notarisate the authenticity of your signature.
- Mail the request and address it to Findata.
- Consider sending the request as a register letter as it contains personal information.
- Findata’s postal address is P.O. Box 30, FI-00301 Helsinki, Finland.
If you are submitting a request on behalf of a minor child or a person under guardianship, you must include a certificate of child custody obtained from the Population Information System. The request must align with the child’s presumed will and serve the child’s best interests. In cases of joint custody, the request must be made and signed by both guardians.
How long does it take to process requests?
As a rule, we process requests within one month of receiving them. If the processing of the request is particularly complex for some reason, we may extend the processing time to a maximum of three months. We will send a reply on the implementation of the request or resolving the matter to the data subject as a Suomi.fi message.
Prohibiting contacting regarding registry research findings
The right to refuse contact based on Section 55 of the Secondary Use Act differs from other rights, as it does not apply to data processed by Findata.
You can submit a prohibition on contact regarding registry research findings electronically in the new version of OmaKanta or at any public healthcare service unit. This request cannot be made through Findata, Kela, or THL.
Prohibiting contacting regarding registry research findings on Omakanta
- Log in to OmaKanta at kanta.fi.
- Select ‘Siirry kokeilemaan OmaKannan uutta versiota’ on the homepage.
- In the sidebar, choose ‘Potilastietojen uudet luvat ja kiellot’
- Open the ‘Kiellot’ tab.
- Under ‘Yhteydenottokielto’, select ‘Rekisteritutkimuksen löydöksiä koskeva yhteydenottokielto’ and click ‘Muokkaa kieltoa’
- Select ‘Tee kielto’ to refuse contact.
Can I cancel an objection request?
If you’ve submitted a request to object to the processing of your personal data, you can cancel it at any time.
A minor can cancel a request made by their guardian, if they are considered mature enough to understand the matter based on their age and development.
How to cancel your objection request
You can cancel your objection in one of the following ways:
- Via the Suomi.fi service:
- Send a message to Findata through the Suomi.fi service.
- When sending the message, select “Terveyden ja hyvinvoinnin laitos” (Finnish Institute for Health and Welfare) as the recipient.
- In person:
- Visit the reception desk of the Finnish Institute for Health and Welfare in Helsinki or Kuopio.
- Bring an identity document for verification.
- THL office addresses are available on THL’s website (thl.fi).
Contact details
Data Protection Officer
tietosuojavastaava@findata.fi
