Tulokset

• Establishing and launching an advisory group
• Appointed representatives for the community of practice
• Presented the project to national secondary use working groups

Throughout the project duration (2024–2027)

• Conducting regular meetings with the advisory group and Community of Practice subgroups.
• Coordinating meetings with health data access bodies that have received direct grant funding from the EU.

Deliverables

• D1.1 Governance Management and Participation Report
  • Deadline: 30 Sep 2027

Milestones

• MS1: Strengthening of the national governance and management structure by presenting the project’s objectives for the key groups
  • Deadline: 30 Sep 2027
• MS2: Findata’s representative in the temporary HealthData@EU cross-border governance body
  • Status: Validated and accepted by Findata’s management team on 2 Apr 2024
  • Findata chaired the EHDS2 Community of Practice (CoP) general assembly in 2024.
  • Expert members in the following subgroups:
    • Data Access Application Systems
    • Health Datasets Metadata Catalogue and Data Quality and Utility
    • Secure Processing Environments
    • Cross-border Gateways
    • Deployment and Operations
• MS3: Setting up of the Advisory Group
  • Status: Validated and accepted by Findata’s management team on 2 Apr 2024
  • Purpose:
    • Findata has established an advisory group that meets three times a year throughout the project duration.
    • The group provides expert insights and guidance, focusing on stakeholders’ perspectives.
  • Participants:
    • Findata
    • The Wellbeing Services County of Southwest Finland (Varha)
    • Ministry of Social Affairs and Health (STM)
    • Sitra
    • Finnish Institute for Health and Welfare (THL)
    • Statistics Finland

2024

• Feb 2024: Created a visual identity and website for the project.
• Spring 2024: Conducted satisfaction surveys for both users and employees regarding our services.
• Apr 2024: Organised a kick-off event for national stakeholders. Read more.
• Spring 2024: Piloted a popular personal consultation service. Read more.
• Nov 2024: Submitted Improved service desk plan (D2.2) for evaluation.
• 7 Nov 2024: Webinar for national stakeholders presenting project plans for the different work packages. Read more.
• 12 Nov 2024: Application Clinic for international customers. Read more.
• 9 Dec 2024: Data resources editor training for data holders. Read more.
• Dec 2024: Submitted Dissemination, training and education plan (D2.1) for evaluation.

2025

• 19 Feb 2025 FinHITS Forum: Service Desk. Read more.
• 11 Mar 2025: Application Clinic for international customers. Read more.
• 27 Mar 2025: Data resource editor training for data holders. Read more.

2025

• 3 Jun 2025 Data resource editor training for data holders. Read more.
• Summer 2025: Training portal
• Autumn 2025: Dissemination campaign
• Oct 2025: Hybrid seminar for international stakeholders

2026

• Apr 2026: FinHITS Forum: Service Desk

2024

• Apr 2024: Presentation of the FinHITS kick-off event (in Finnish, PDF, 2.6 Mb)
• Apr 2024: Summary of the workshops held during the FinHITS kick-off event
  • English (PDF, 1 Mb)
  • Finnish (PDF, 1 Mb)
• May 2024: Summary of the results of the customer satisfaction survey
  • English (PDF, 2 Mb)
  • Finnish (PDF, 2 Mb)
• May 2024: Presentation of the FinHITS project
  • English (PDF, 1 Mb)
  • Finnish (PDF, 1 Mb)
• Nov 2024: FinHITS webinar presentation (in Finnish, PDF, 3.1 Mb)

2025

• Feb 2025: FinHITS Forum: Service desk presentation (PDF, 6 Mb)

Deliverables

• D2.1 Dissemination, training and education plan
  • Deadline: 31 Dec 2024
  • Status: Submitted for evaluation in Dec 2024
• D2.2 Dissemination, Education and training portal/website
  • Deadline: 30 Jun 2026
• D2.3 Dissemination, Education and Training Monitoring Report
  • Deadline: 31 Oct 2027
• D2.4 MS Improved Service Desk Plan
  • Deadline: 31 Oct 2024
  • Status: Submitted for evaluation in Oct 2024

Milestones

• MS4 Dissemination campaign
  • Deadline: 31 Oct 2026
• MS5 Training and education material
  • Deadline: 31 Oct 2025
• MS6 Improved Help desk
  • Deadline: 31 Oct 2025

2024

• Apr 2024: Established a set of indicators (MS7) to measure progress and track project goals.

2025

• Feb 2025: Submitted report on the performance monitoring indicators framework (D3.1) for evaluation.

Throughout the project duration (2024–2027)

• Conducting semi-annual reviews of the indicators to assess progress and identify potential challenges.
• Implementing adjustments as needed to address issues and ensure the project stays on track for successful completion.

Deliverables

• D3.1 Report on the performance monitoring indicators framework
  • Deadline: 28 Feb 2025
  • Status: Submitted for evaluation in Feb 2025
• D3.2 Overall evaluation report
  • Deadline: 31 Aug 2027
• D3.3 Action-level Indicators -report
  • Deadline: 30 Jun 2027

Milestones

• MS7 Definition of performance monitoring indicators
  • Status: Validated and accepted by Findata’s management team on 2 Apr 2024.
  • Purpose: Findata has established performance indicators for the FinHITS project. These include baselines, targets, measurement methods, and responsibilities for each indicator. Continuous monitoring of these indicators ensures the project goals are achieved.
• MS8 Overall evaluation of the project
  • Deadline: 31 Jul 2027

2024

• Updated the project’s risk management plan, including risk mitigation measures and clear procedures for ongoing risk monitoring.
• Began drafting Sustainability plan (D4.1), covering various secondary use services.

• Submitting a detailed Sustainability plan (D4.1) to ensure long-term durability of digital capabilities.
• Creating a Business continuity plan (D4.2) to address potential disruptions and maintain operations under various scenarios.

Deliverables

• D4.1 Sustainability Plan
  • Deadline: 30 Jun 2027
• D4.2 Business Continuity Plan
  • Deadline: 30 Jun 2027

Milestones

• MS9 Preparation of a Sustainability Plan
  • Deadline: 28 Feb 2027
• MS10 Preparation of a Business Continuity Plan
  • Deadline: 28 Feb 2027

2024

• Oct 2024: Defined the key requirements for the e-service.
• Oct 2024: Started developing a new pilot environment.

2025

• Jan 2025: Submitted Requirements, Specifications and Prototype report (D5.1) for evaluation.

2025

• 14 May 2025: FinHITS Forum: E-service
• Oct 2025: FinHITS Forum: E-service

Throughout the project duration (2024–2027)

• Upgrading the e-service to enhance usability and streamline the user experience.
• Developing and implementing a more structured data description tool to simplify the data selection process and enhance efficiency.
• Facilitating collaboration between data users, data holders and HDAB to reduce errors in data extraction and increase overall accuracy.

Deliverables

• D5.1 DAAMs: Requirements, Specifications and Prototype
  • Deadline: 31 Jan 2025
  • Status: Submitted for evaluation in Jan 2025
• D5.2 DAAMs: Pilot Report
  • Deadline: 31 Jan 2027
• D5.3 DAAMs: Operational Service
  • Deadline: 31 Jul 2027

Milestones

• MS11 DAAMs: Draft requirements, Specifications and Prototype
  • Deadline: 31 Oct 2024
  • Status: Validated and accepted by Findata’s management team in Oct 2024
• MS12 DAAMs: Minimum Viable Product (MVP)
  • Deadline: 31 Oct 2026
• MS13 DAAMs: Operational Product (OP)
  • Deadline: 30 Apr 2027

2024

• Oct 2024: Completed a needs assessment for the National dataset catalogue (MS14) based on backlog, satisfaction surveys, and FinHITS kick-off workshops.

2025

• Jan 2025: Submitted the technical requirements for the Dataset catalogue (D6.1) based on the feedback received.

2025

• 3 Dec 2025: FinHITS Forum: National dataset catalogue

2026

• Aug 2026: FinHITS Forum: National dataset catalogue

Throughout the project duration (2024–2027)

• Enabling the integration of the National dataset catalogue with the e-service.
• Enhancing the usability of the catalogue to make data searches more intuitive and efficient.
• Ensuring the catalogue is accessible and functional for international clients.
• Implementation plan for HealthDCAT format

Deliverables

• D6.1 nHDsC: Requirements and Specifications
  • Deadline: 31 Jan 2025
  • Status: Submitted for evaluation in Jan 2025
• D6.2 nHDsC: Pilot Report
  • Deadline: 31 Jul 2026
• D6.3 nHDsC: Operational Service
  • Deadline: 31 Jul 2027

Milestones

• MS14 nHDsC: Draft Requirements and Specifications and Prototype
  • Deadline: 31 Oct 2024
  • Status: Validated and accepted by Findata’s management team in Oct 2024
• MS15 nHDsC: Minimum Viable Product (MVP)
  • Deadline: 30 Apr 2026
• MS16 nHDsC: Operational Product (OP)
  • Deadline: 30 Apr 2027

2024

• 2024: Started development of the licensing tool.
• 6 Jun 2024: Stakeholder meeting on federated computing.

2025

• Spring 2025: Piloting of anonymity verification tool and data transfer service Supertunneli for large datasets.
• 20 Mar, 2025: Stakeholder workshop on federated computing.
• 1 Apr 2025: Starting to gradually introduce the new secure data transfer service, Supertunneli. Read more.
• 14 Apr 2025: Stakeholder workshop on federated computing.

2025

• 4 Jun 2025: FinHITS Forum: SPE
• Spring-Summer 2025: Launching a tool for more efficient anonymity verification

2026

• Jun 2026: FinHITS Forum: SPE

Throughout the project duration (2024–2027)

• Increasing computing power by GPU capabilities.
• Enhancing license management to improve the user experience.

Deliverables

• D7.1 SPE: Requirements and Specifications
  • Deadline: 31 Jan 2025
  • Status: Submitted for evaluation in Jan 2025
• D7.2 SPE: Pilot Report
  • Deadline: 31 Jul 2026
• D7.3 SPE: Operational Service
  • Deadline: 31 Jul 2027

Milestones

• MS17 SPE: Draft requirements, Specifications and Prototype
  • Deadline: 31 Oct 2024
  • Status: Validated and accepted by Findata’s management team in Oct 2024
• MS18 SPE: Minimum Viable Product
  • Deadline: 30 Apr 2026
• MS19 SPE: Operational Product
  • Deadline: 30 Apr 2027

2024

• Assembled working group for the package.

Throughout the project duration (2024–2027)

• Engaging in the Community of Practice (CoP) subgroup.
• Collaborating with other EU initiatives, such as the EHDS2 and TEHDAS2 projects:
  • As the EHDS2 pilot concludes, we have conducted data transfer meetings with the EHDS2 pilot team.
  • Findata participates in the TEHDAS2 project and monitors the progress of WP7, which is crucial for the work related to FinHITS WP8.

2026

• Feb 2026: FinHITS Forum: Cross-border gateway
• Oct 2026: FinHITS Forum: Cross-border gateway

Throughout the project duration (2024–2027)

• Continuing the development of the cross-border data transfer solution from the conclusion of the EHDS2 pilot.
• Creating a national connector to integrate the DAAMs solution and the national dataset catalogue with EU-Central services.
• Enabling integration with the HealthData@EU infrastructure

Deliverables

• D8.1 National Connector for Cross-border gateway: Requirements and Specifications
  • Deadline: 31 Jan 2026
• D8.2 Cross-border gateway: Pilot Report
  • Deadline: 31 Jan 2027
• D8.3 Cross-border gateway: Operational Service
  • Deadline: 31 Jul 2027

Milestones

• MS20 Cross-border gateway: Draft requirements, Specifications and Prototype
  • Deadline: 31 Oct 2025
• MS21 Cross-border gateway: Minimum Viable Product
  • Deadline: 31 Oct 2026
• MS22 Cross-border gateway: Operational Product
  • Deadline: 30 Apr 2027

2024

• Apr 2024: Published the FinRegistry ready-made dataset. Read more.

2025

• Spring 2025: Started planning the second ready-made dataset.
• Spring 2025: Started drafting requirements for the data quality enhancement (D9.1).

2025

• Dec 2025: FinHITS Forum: Data quality

2026

• Dec 2026: FinHITS Forum: Data quality

Throughout the project duration (2024–2027)

• Producing ready-made datasets for customer access.
• Creating support materials on data quality.

Deliverables

• D9.1 Health data quality enhancement: Requirements and Specifications
  • Deadline: 30 Jun 2025
• D9.2 Health data quality enhancement High-quality datasets
  • Deadline: 31 Oct 2026
• D9.3 Health data quality enhancement: Data quality solutions report
  • Deadline: 31 Jul 2027

Milestones

• MS23 Health data quality enhancement: Draft Requirements and Specifications
  • Deadline: 31 Oct 2024
  • Status: Validated and accepted by Findata’s management team in Oct 2024
• MS24 Health data quality enhancement: Description on ready-made datasets
  • Deadline: 30 Apr 2026
• MS25 Health data quality enhancement: Data quality solutions
  • Deadline: 30 Apr 2027